Rare Disease Day 2024: Rare Diseases of the world could not get our consideration each day, even when they need to. When only a few individuals get affected by a illness, it is probably not part of the mainstream information – making it troublesome for us to entry such info. However, uncommon illnesses will be lethal and may declare lots of lives. Rare Disease Day is noticed yearly to create consciousness on the uncommon illnesses that exist and the way they will have an effect on the each day lives of the sufferers. As we gear as much as observe Rare Disease Day for this yr, listed here are a couple of info that we should know concerning the necessary day.

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Date:

Every yr, Rare Disease Day is noticed on the final day of February. Every yr, Rare Disease Day is widely known on February 28. However, for the reason that yr 2024 is a intercalary year, Rare Disease Day will likely be noticed on February 29. This yr, the day falls on a Thursday.

History:

In the yr 2008, EURORDIS, with the Council of National Alliances introduced Rare Diseases Day to be noticed on February 29 protecting in thoughts the rarity of the date within the calendar. In the primary yr of celebrations, Rare Disease Day noticed participation from eighteen nations in Europe. Since then, Rare Disease Day has been noticed on the final day of February yearly.

Significance:

According to the official web site of the National Organisation for Rare Diseases, “One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn’t have to be that way. Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year.”